Champions are resourceful
Champions need support
Community can be helpful, especially when caring for someone with such a complex disease. The following organizations below are here to help support you and your child. Reach out—you’re not alone.
The GFPD funds and promotes peroxisomal disorder research and assists families and professionals through educational programs and support services related to Zellweger spectrum disorders.
NORD is the leading organization committed to the identification, treatment, and cure of rare disorders through programs of policy, advocacy, education, research, and patient assistance.
Global Genes works to eliminate the challenges of rare disease faced by 350 million people worldwide, while unifying the rare community under a symbol of hope—the Blue Denim Genes Ribbon®.
ChiLDReN is a collaborative team of doctors, nurses, research coordinators, medical facilities, and patient support organizations working to advance understanding of rare liver diseases.